Megie Okumura
Associate Professor
+1 415 502-8068
+1 415 476-6106

Biography

My research is aimed at studying and formulating interventions that will address barriers and facilitators to chronic illness care for children with special health care needs as they transition from the pediatric to adult health care setting. I am dual-board certified in general pediatrics and internal medicine, and therefore have a unique perspective on the health care issues affecting the entire age spectrum of patients with childhood-onset chronic illnesses. My research and professional goal is to improve health care quality for youth and young adults with chronic conditions as they transition from pediatric to adult health care. Ultimately, I intend to apply my research to chronic illness care across the lifespan.

My current research program focuses on studies that will inform ways to improve the quality of health care among adolescents and young adults with chronic conditions. In order to best design programs that can help these YSHCN, my research has focused on epidemiologic studies of health care utilization and health care needs. My work has focused on interventions that will assist YSHCN transition from pediatric to adult health care. I have focused my interventions within the primary care setting as well as in subspecialty care (Cystic Fibrosis and Diabetes). Additionally, I work with community partners around the Bay Area to help develop mechanisms to improve the care of persons with disabilities in the community.

Education and Training

M.A.S, 2011 Epidemiology and Biostatistics, UCSF
Institute for Health Policy Studies Fellowship, 2008 School of Medicine, UCSF
Robert Wood Johnson Clinical Scholars Program, 2006 School of Medicine, University of Michigan
Internal Medicine and Pediatrics Combined Residency Program, 2004 School of Medicine, Yale-New Haven Hospital
M.D., 2000 School of Medicine, New York Medical College

Publications

Vukkadala N, Giridhar SBP, Okumura MJ, Chan DK. Seeking equilibrium: The experiences of parents of infants and toddlers who are deaf/hard-of-hearing. J Pediatr Rehabil Med. 2019; 12(1):11-20.
Okumura MJ. The Transition Journey: Time to Systematically Address Transition Planning to Adult Health Care. Pediatrics. 2018 Oct; 142(4).
Okumura MJ, Knauer HA, Calvin KE, Takayama JI. Caring for Children with Special Health Care Needs: Profiling Pediatricians and Their Health Care Resources. Matern Child Health J. 2018 07; 22(7):1042-1050.
Chien AT, Toomey SL, Kuo DZ, Van Cleave J, Houtrow AJ, Okumura MJ, Westfall MY, Petty CR, Quinn JA, Kuhlthau KA, Schuster MA. Care Quality and Spending Among Commercially Insured Children With Disabilities. Acad Pediatr. 2018 Jun 19.
Mahan JD, Betz CL, Okumura MJ, Ferris ME. Self-management and Transition to Adult Health Care in Adolescents and Young Adults: A Team Process. Pediatr Rev. 2017 Jul; 38(7):305-319.
Rosenthal JL, Li ST, Hernandez L, Alvarez M, Rehm RS, Okumura MJ. Familial Caregiver and Physician Perceptions of the Family-Physician Interactions During Interfacility Transfers. Hosp Pediatr. 2017 Jun; 7(6):344-351.
Rosenthal JL, Romano PS, Kokroko J, Gu W, Okumura MJ. Receiving Providers' Perceptions on Information Transmission During Interfacility Transfers to General Pediatric Floors. Hosp Pediatr. 2017 Jun; 7(6):335-343.
Sharma N, O'Hare K, O'Connor KG, Nehal U, Okumura MJ. Care Coordination and Comprehensive Electronic Health Records are Associated With Increased Transition Planning Activities. Acad Pediatr. 2018 Jan - Feb; 18(1):111-118.
Chien AT, Kuhlthau KA, Toomey SL, Quinn JA, Okumura MJ, Kuo DZ, Houtrow AJ, Van Cleave J, Landrum MB, Jang J, Janmey I, Furdyna MJ, Schuster MA. Quality of Primary Care for Children With Disabilities Enrolled in Medicaid. Acad Pediatr. 2017 May - Jun; 17(4):443-449.
Flaherman VJ, Epstein J, Amendola L, Inge R, Featherstone JD, Okumura M. Preventive Dental Care at 6-Month Intervals Is Associated With Reduced Caries Risk. Clin Pediatr (Phila). 2018 Feb; 57(2):222-226.
Okumura MJ, Knauer HA, Calvin KE, Takayama JI. Pediatricians' Comfort Level in Caring for Children With Special Health Care Needs. Acad Pediatr. 2017 08; 17(6):678-686.
Rosenthal JL, Hilton JF, Teufel RJ, Romano PS, Kaiser SV, Okumura MJ. Profiling Interfacility Transfers for Hospitalized Pediatric Patients. Hosp Pediatr. 2016 Jun; 6(6):345-53.
Rosenthal JL, Okumura MJ, Hernandez L, Li ST, Rehm RS. Interfacility Transfers to General Pediatric Floors: A Qualitative Study Exploring the Role of Communication. Acad Pediatr. 2016 Sep-Oct; 16(7):692-9.
Okumura MJ, Kleinhenz ME. Cystic Fibrosis Transitions of Care: Lessons Learned and Future Directions for Cystic Fibrosis. Clin Chest Med. 2016 Mar; 37(1):119-26.
Van Cleave J, Okumura MJ, Swigonski N, O'Connor KG, Mann M, Lail JL. Medical Homes for Children With Special Health Care Needs: Primary Care or Subspecialty Service? Acad Pediatr. 2016 May-Jun; 16(4):366-72.
Chien AT, Kuhlthau KA, Toomey SL, Quinn JA, Houtrow AJ, Kuo DZ, Okumura MJ, Van Cleave JM, Johnson CK, Mahoney LL, Martin J, Landrum MB, Schuster MA. Development of the Children With Disabilities Algorithm. Pediatrics. 2015 Oct; 136(4):e871-8.
Kaiser SV, Bakel LA, Okumura MJ, Auerbach AD, Rosenthal J, Cabana MD. Risk Factors for Prolonged Length of Stay or Complications During Pediatric Respiratory Hospitalizations. Hosp Pediatr. 2015 Sep; 5(9):461-73.
Okumura MJ, Saunders M, Rehm RS. The Role of Health Advocacy in Transitions from Pediatric to Adult Care for Children with Special Health Care Needs: Bridging Families, Provider and Community Services. J Pediatr Nurs. 2015 Sep-Oct; 30(5):714-23.
Ferris ME, Ferris MT, Okumura MJ, Cohen SE, Hooper SR. Health care transition preparation in youth with chronic conditions: working towards translational evidence with a patient perspective. J Pediatr Rehabil Med. 2015; 8(1):31-7.
Edwards JD, Vasilevskis EE, Yoo EJ, Houtrow AJ, Boscardin WJ, Dudley RA, Okumura MJ. Adults with childhood-onset chronic conditions admitted to US pediatric and adult intensive care units. J Crit Care. 2015 Feb; 30(1):201-6.
Razani N, Hilton JF, Halpern-Felsher BL, Okumura MJ, Morrell HE, Yen IH. Neighborhood Characteristics and ADHD: Results of a National Study. J Atten Disord. 2015 Sep; 19(9):731-40.
Lawson EF, Hersh AO, Trupin L, von Scheven E, Okumura MJ, Yazdany J, Yelin EH. Educational and vocational outcomes of adults with childhood- and adult-onset systemic lupus erythematosus: nine years of followup. Arthritis Care Res (Hoboken). 2014 May; 66(5):717-24.
Okumura MJ, Ong T, Dawson D, Nielson D, Lewis N, Richards M, Brindis CD, Kleinhenz ME. Improving transition from paediatric to adult cystic fibrosis care: programme implementation and evaluation. BMJ Qual Saf. 2014 Apr; 23 Suppl 1:i64-i72.
Betz CL, Ferris ME, Woodward JF, Okumura MJ, Jan S, Wood DL. The health care transition research consortium health care transition model: a framework for research and practice. J Pediatr Rehabil Med. 2014; 7(1):3-15.
Edwards JD, Houtrow AJ, Vasilevskis EE, Dudley RA, Okumura MJ. Multi-institutional profile of adults admitted to pediatric intensive care units. JAMA Pediatr. 2013 May; 167(5):436-43.
Houtrow AJ, Maselli JH, Okumura MJ. Inpatient care for children, ages 1-20 years, with spina bifida in the United States. J Pediatr Rehabil Med. 2013; 6(2):95-101.
Okumura MJ, Hersh AO, Hilton JF, Lotstein DS. Change in health status and access to care in young adults with special health care needs: results from the 2007 national survey of adult transition and health. J Adolesc Health. 2013 Apr; 52(4):413-8.
Stevenson DA, Allen S, Tidyman WE, Carey JC, Viskochil DH, Stevens A, Hanson H, Sheng X, Thompson BA, Okumura MJ, Reinker K, Johnson B, Rauen KA. Peripheral muscle weakness in RASopathies. Muscle Nerve. 2012 Sep; 46(3):394-9.
Lawson EF, Hersh AO, Applebaum MA, Yelin EH, Okumura MJ, von Scheven E. Self-management skills in adolescents with chronic rheumatic disease: A cross-sectional survey. Pediatr Rheumatol Online J. 2011 Dec 06; 9(1):35.
Houtrow AJ, Okumura MJ, Hilton JF, Rehm RS. Profiling health and health-related services for children with special health care needs with and without disabilities. Acad Pediatr. 2011 Nov-Dec; 11(6):508-16.
Houtrow AJ, Okumura MJ. PEDIATRIC MENTAL HEALTH PROBLEMS AND ASSOCIATED BURDEN ON FAMILIES. Vulnerable Child Youth Stud. 2011 Sep; 6(3):222-233.
Okumura MJ, Kerr EA, Cabana MD, Davis MM, Demonner S, Heisler M. Physician views on barriers to primary care for young adults with childhood-onset chronic disease. Pediatrics. 2010 Apr; 125(4):e748-54.
Okumura MJ. Growing up and getting old(er) with childhood-onset chronic diseases: paving the way to better chronic illness care worldwide. J Adolesc Health. 2009 Dec; 45(6):541-2.
Okumura MJ, Van Cleave J, Gnanasekaran S, Houtrow A. Understanding factors associated with work loss for families caring for CSHCN. Pediatrics. 2009 Dec; 124 Suppl 4:S392-8.
Okumura MJ, Heisler M, Davis MM, Cabana MD, Demonner S, Kerr EA. Comfort of general internists and general pediatricians in providing care for young adults with chronic illnesses of childhood. J Gen Intern Med. 2008 Oct; 23(10):1621-7.
Lee JM, Okumura MJ, Freed GL, Menon RK, Davis MM. Trends in hospitalizations for diabetes among children and young adults: United States, 1993 2004. Diabetes Care. 2007 Dec; 30(12):3035-9.
Okumura MJ, McPheeters ML, Davis MM. State and national estimates of insurance coverage and health care utilization for adolescents with chronic conditions from the National Survey of Children's Health, 2003. J Adolesc Health. 2007 Oct; 41(4):343-9.
Okumura MJ, Cabana MD. The results of a randomized controlled trial to evaluate the effect of Lactobacillus rhamnosus. J Hum Nutr Diet. 2006 Dec; 19(6):451; author reply 452.
Lee JM, Okumura MJ, Davis MM, Herman WH, Gurney JG. Prevalence and determinants of insulin resistance among U.S. adolescents: a population-based study. Diabetes Care. 2006 Nov; 29(11):2427-32.
Okumura MJ, Campbell AD, Nasr SZ, Davis MM. Inpatient health care use among adult survivors of chronic childhood illnesses in the United States. Arch Pediatr Adolesc Med. 2006 Oct; 160(10):1054-60.