Through our multidisciplinary Spina Bifida Clinic, we are one of several centers involved in pilot-testing a proposed national spina bifida registry tool. The pediatric rehabilitation program will work collaboratively with the Centers for Disease Control and Prevention and other grantee demonstration programs to evaluate and improve this registry tool. As a clinical center on this study, subcontracted through Children’s Hospital Oakland, we participate in recruitment, ascertainment of medical records, and use of the spina bifida registry tool.