The UCSF Childhood and Adolescent Comprehensive Lupus Program for Improved Health provides diagnostic and therapeutic services aimed at maximizing the future health of young patients with lupus. Care is directed both at optimizing lupus disease control and providing preventative services for some of the common long-term complications facing these children. These services address heart health, bone health, transition planning, and social support. Patients are seen in conjunction with pediatric nephrologists, if indicated. Children and adolescents with lupus are seen in a dedicated multidisciplinary clinic on Friday mornings.
Appointments can be made through the Rheumatology Clinic.
For more information or questions about the program, contact the lupus liaison: [email protected]
Comprehensive medical care
- Annual comprehensive care visits with the goal for screening for and preventing the common long-term health problems that can affect individuals with lupus
- Evaluation for complications such as abnormal cholesterol and lipid levels that can lead to atherosclerosis and premature heart attacks and strokes, and screening for osteoporosis that can lead to bone fragility and fracture
- Doctors work with families to assess bone density, cholesterol levels, dietary patterns, and levels of physical activity to help reduce these risks
Reproductive health care
- Education and consultation services with an adolescent medicine physician to address birth control, pregnancy planning and prevention of sexually transmitted infections
Care coordination and community outreach
- Managing a chronic condition like lupus often requires coordination among many providers, health care facilities (for example, pharmacies, labs, etc.), insurance companies and schools. A dedicated lupus liaison is available to provide education to community providers and assist with coordination of care. This can make it easier for families to receive services and resources near their home.
Lupus Youth Connect (Supportive Programming)
- Children and families often face challenges including difficulty adjusting to the diagnosis, feelings of loneliness, keeping up with complex medical treatment plans, and finding care and resources. The Lupus Buddies Program and Lupus Peer Group augment the medical treatment by providing strategies for coping with these challenges and strengthening support. For further information contact Mariel dela Paz.
- The transition from pediatric to adult care can be a challenging time for teens and families. Often, many decisions need to be made regarding insurance and choosing new doctors. To ensure smooth transition, our program provides annual assessment of transition readiness skills, individualized transition planning with families, and the opportunity to meet with a UCSF adult rheumatologist who specializes in lupus to address any questions or concerns before transferring care.