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Caught between pity, explicit bias, and discrimination: a qualitative study on the impact of stigma on the quality of life of persons living with sickle cell disease in three African countries.
Identifying clinically meaningful severity categories for PROMIS pediatric measures of anxiety, mobility, fatigue, and depressive symptoms in juvenile idiopathic arthritis and childhood-onset systemic lupus erythematosus.
Correction to: Eculizumab improves fatigue in refractory generalized myasthenia gravis.
Eculizumab improves fatigue in refractory generalized myasthenia gravis.
Diabetes symptoms predictors of health-related quality of life in adolescents and young adults with type 1 or type 2 diabetes.
Correction to: Impact of an electronic monitoring device and behavioural feedback on adherence to multiple sclerosis therapies in youth: results of a randomized trial.
Impact of an electronic monitoring device and behavioral feedback on adherence to multiple sclerosis therapies in youth: results of a randomized trial.
Relationship among chelator adherence, change in chelators, and quality of life in thalassemia.
The development of the pediatric cardiac quality of life inventory: a quality of life measure for children and adolescents with heart disease.