Marsha Treadwell, PhD

I am a Professor in the Department of Pediatrics, Division of Hematology in the UCSF School of Medicine. I serve as the Co-Chair for the Diversity, Equity and Inclusion Council for the UCSF Benioff Children’s Hospitals. I am the Director of the Sickle Cell Care Coordination Initiative, the Northern California site for the Sickle Cell Disease Implementation Consortium. I also serve as Regional Director for the Pacific Sickle Cell Regional Collaborative. I am a licensed clinical psychologist and my research and clinical work has focused on improving quality of life, quality of care, patient reported outcomes and transition from pediatric to adult care for individuals living with sickle cell disease and their families.
Publications
  1. Transitioning Adolescents With Sickle Cell Disease From Pediatric to Adult Care: Results From a New Survey of Health Care Professionals.
  2. An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model.
  3. Perspectives of individuals with sickle cell disease on barriers to care.
  4. Pregnancy outcomes with hydroxyurea use in women with sickle cell disease.
  5. Identifying barriers to evidence-based care for sickle cell disease: results from the Sickle Cell Disease Implementation Consortium cross-sectional survey of healthcare providers in the USA.
  6. Early Evaluation of the Use of Crizanlizumab in Sickle Cell Disease: A National Alliance of Sickle Cell Centers Study.
  7. Improving Completion Rates of Transcranial Doppler Ultrasounds in Children with Sickle Cell Disease Using Quality Improvement Efforts: In-Clinic Vs. Population-Based Assessments.
  8. Sex-based differences in the manifestations and complications of sickle cell disease: Report from the Sickle Cell Disease Implementation Consortium.
  9. Patient-reported neurocognitive symptoms influence instrumental activities of daily living in sickle cell disease.
  10. Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial.
  11. Electronic Health Record-Embedded Individualized Pain Plans for Emergency Department Treatment of Vaso-occlusive Episodes in Adults With Sickle Cell Disease: Protocol for a Preimplementation and Postimplementation Study.
  12. Improving Preventive Care for Children With Sickle Cell Anemia: A Quality Improvement Initiative.
  13. Association between hospital admissions and healthcare provider communication for individuals with sickle cell disease.
  14. Hydroxyurea Use and Outcomes of Pregnancy in Sickle Cell Disease.
  15. Predictors of Maternal Morbidity Among Participants Enrolled in the Sickle Cell Disease Implementation Consortium Registry.
  16. Intentional and unintentional nonadherence to hydroxyurea among people with sickle cell disease: a qualitative study.
  17. Building access to care in adult sickle cell disease: defining models of care, essential components, and economic aspects.
  18. Integration of Mobile Health Into Sickle Cell Disease Care to Increase Hydroxyurea Utilization: Protocol for an Efficacy and Implementation Study.
  19. A National Measurement Framework to Assess and Improve Sickle Cell Care in 4 US Regions.
  20. Patient-reported outcomes in sickle cell disease and association with clinical and psychosocial factors: Report from the sickle cell disease implementation consortium.
  21. Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care.
  22. Paediatric to adult transition care for patients with sickle cell disease: a global perspective.
  23. Impact of Medicaid expansion on access and healthcare among individuals with sickle cell disease.
  24. Understanding sickle cell disease: impact of surveillance and gaps in knowledge.
  25. Chapter 8 Pediatric sickle cell disease.
  26. Social and Psychological Factors Associated With Health Care Transition for Young Adults Living With Sickle Cell Disease.
  27. Risk factors for hospitalizations and readmissions among individuals with sickle cell disease: results of a U.S. survey study.
  28. A Pilot Adult Sickle Cell Hematology Clinic in California's Inland Empire Improves Patient Outcome.
  29. Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations.
  30. Exploring the Role of Shared Decision Making in the Consent Process for Pediatric Genomics Research in Cameroon, Tanzania, and Ghana.
  31. A STRATEGY FOR THE MEASUREMENT OF SICKLE CELL DISEASE SYMPTOMS FROM THE PATIENT PERSPECTIVE.
  32. Barriers to Pediatric Sickle Cell Disease Guideline Recommendations.
  33. Lessons Learned from Building a Pediatric-to-Adult Sickle Cell Transition Program.
  34. Development of a Hydroxyurea Decision Aid for Parents of Children With Sickle Cell Anemia.
  35. Measurement of Sickle Cell Disease Symptoms from the Patient Perspective: Considerations for Clinical Trials.
  36. Pediatric residents' perceived barriers to opioid use in sickle cell disease pain management.
  37. Virtual reality as complementary pain therapy in hospitalized patients with sickle cell disease.
  38. The sickle cell disease implementation consortium: Translating evidence-based guidelines into practice for sickle cell disease.
  39. Relation Between Religious Perspectives and Views on Sickle Cell Disease Research and Associated Public Health Interventions in Ghana.
  40. Modifying factors of the health belief model associated with missed clinic appointments among individuals with sickle cell disease.
  41. Sensitivity of alternative measures of functioning and wellbeing for adults with sickle cell disease: comparison of PROMIS® to ASCQ-Me℠.
  42. Stakeholder Perspectives on Public Health Genomics Applications for Sickle Cell Disease: A Methodology for a Human Heredity and Health in Africa (H3Africa) Qualitative Research Study.
  43. Impact of Elosulfase Alfa on Pain in Patients with Morquio A Syndrome over 52 Weeks.
  44. Long-Term Pulmonary Function and Quality of Life in Children After Acute Respiratory Distress Syndrome: A Feasibility Investigation.
  45. Emergency department utilization by Californians with sickle cell disease, 2005-2014.
  46. Mortality Among Women with Sickle Cell Disease Admitted for Delivery, California 2004-2014.
  47. Self-efficacy and readiness for transition from pediatric to adult care in sickle cell disease.
  48. Impact of elosulfase alfa in patients with morquio A syndrome who have limited ambulation: An open-label, phase 2 study.
  49. 278 Emergency Department Utilization by Californians With Sickle Cell Disease, 2005-2014.
  50. Barriers and facilitators to research participation among adults, and parents of children with sickle cell disease: A trans-regional survey.
  51. Quality of care in sickle cell disease: Cross-sectional study and development of a measure for adults reporting on ambulatory and emergency department care.
  52. Development of a sickle cell disease readiness for transition assessment.
  53. Community engagement to inform the development of a sickle cell counselor training and certification program in Ghana.
  54. Proceedings of a Sickle Cell Disease Ontology workshop - Towards the first comprehensive ontology for Sickle Cell Disease.
  55. Global Challenges in Transition Care: One Program Models a Path for Young Adults with Sickle Cell Disease.
  56. Impact of elosulfase alfa in patients with Morquio syndrome type A who have limited ambulation: An open-label, phase 2 study.
  57. Teaching About Genetics and Sickle Cell Disease In Fifth Grade.
  58. Safety and physiological effects of two different doses of elosulfase alfa in patients with morquio a syndrome: A randomized, double-blind, pilot study.
  59. Sickle cell disease and H3Africa: enhancing genomic research on cardiovascular diseases in African patients.
  60. Impact of elosulfase alfa on pain in patients with Morquio syndrome type A.
  61. Adult sickle cell quality-of-life measurement information system (ASCQ-Me): conceptual model based on review of the literature and formative research.
  62. Using formative research to develop a counselor training program for newborn screening in Ghana.
  63. Population based surveillance in sickle cell disease: methods, findings and implications from the California registry and surveillance system in hemoglobinopathies project (RuSH).
  64. Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks.
  65. Research capacity. Enabling the genomic revolution in Africa.
  66. A Quality Improvement Initiative to Improve Emergency Department Care for Pediatric Patients with Sickle Cell Disease.
  67. Quality Improvement Goals for Sickle Cell Disease Pain Management in an Urban Pediatric Emergency Department: We Can Do Better!.
  68. A biopsychosocial-spiritual model of chronic pain in adults with sickle cell disease.
  69. Screening U.S. college athletes for their sickle cell disease carrier status.
  70. Mental Health Symptoms, Quality of Life and Barriers to Accessing Health Care in Sickle Cell Disease.
  71. Autonomic nervous system reactivity: children with and without sickle cell disease.
  72. The mediating effects of family functioning on psychosocial outcomes in healthy siblings of children with sickle cell disease.
  73. Transition from pediatric to adult care in sickle cell disease: establishing evidence-based practice and directions for research.
  74. Chart Card: feasibility of a tool for improving emergency department care in sickle cell disease.
  75. Education and employment status of children and adults with thalassemia in North America.
  76. A review of the literature on the multiple dimensions of chronic pain in adults with sickle cell disease.
  77. Stress reactivity as a moderator of family stress, physical and mental health, and functional impairment for children with sickle cell disease.
  78. Psychosocial and behavioral outcomes in children with sickle cell disease and their healthy siblings.
  79. Detection and assessment of stroke in patients with sickle cell disease: neuropsychological functioning and magnetic resonance imaging.
  80. An expanded Transactional Stress and Coping Model for siblings of children with sickle cell disease: family functioning and sibling coping, self-efficacy and perceived social support.
  81. Quantification of analgesic use in children with sickle cell disease.
  82. Sickle Cell Disease Health-Related Quality of Life Questionnaire Project.
  83. Using qualitative and quantitative strategies to evaluate knowledge and perceptions about sickle cell disease and sickle cell trait.
  84. Changes in sleep, food intake, and activity levels during acute painful episodes in children with sickle cell disease.
  85. Autonomic reactivity and clinical severity in children with sickle cell disease.
  86. Quality of Life (QOL) in Sickle Cell Disease (SCD).
  87. Barriers to adherence of deferoxamine usage in sickle cell disease.
  88. Trends in complete blood count values during acute painful episodes in children with sickle cell disease.
  89. Are there phases to the vaso-occlusive painful episode in sickle cell disease?
  90. A simple model to assess and improve adherence to iron chelation therapy with deferoxamine in patients with thalassemia.
  91. Quality of life in patients with thalassemia intermedia compared to thalassemia major.
  92. Assessing Compliance to Iron Chelation Therapy in Patients with Thalassemia.
  93. Barriers to Deferoxamine Adherence for Adults with Sickle Cell Disease.
  94. Quality of Life in Patients with Thalassemia.
  95. Pain in children Are there phases to the vaso-occlusive episode in children with sickle cell disease.
  96. Management of vaso-occlusive pain in children with sickle cell disease.
  97. Changes in intensity, location, and quality of vaso-occlusive pain in children with sickle cell disease.
  98. Assessment of sickle cell pain in children and young adults using the adolescent pediatric pain tool.
  99. Using quality improvement strategies to enhance pediatric pain assessment.
  100. Improving adherence with deferoxamine regimens for patients receiving chronic transfusion therapy.
  101. Comparing Children with Sickle Cell Disease and Their Healthy Siblings on Measures of Coping, Self-Efficacy, Social Support, and Behavioral Problems,.
  102. Practice guidelines for the assessment of children with sickle cell pain.
  103. Approaches to working with adult thalassemia patients in pediatric settings.
  104. #652 Evaluation of home desferal care in transfusion dependent children with thalassemia and sickle cell disease (SCD).