Emily von Scheven, MD, MAS

My long-term goal is to improve the care and outcomes of children with rheumatic diseases. My research has focused on defining and improving outcomes in pediatric-onset Lupus, evaluating and treating childhood osteoporosis, addressing the transition needs of patients as they transition from pediatric to adult providers, and optimizing wellness. I have experience conducting single-center and multi-center studies of various designs, including cohort studies, RCTs, focus groups, and consensus work.
Education
Master's of Advanced Studies, 2004 - Epidemiology & Biostatistics, UCSF
Fellowship, 1995 - Pediatric Rheumatology, Children's Hospital of Philadelphia
Residency, 1992 - Pediatrics, Children's National Medical Center
M.D., 1989 - School of Medicine, Pennsylvania State University
Websites
  1. Mannion ML, Amin S, Balevic S, Chang ML, Correll CK, Kearsley-Fleet L, Hyrich KL, Beukelman T, Childhood Arthritis and Rheumatology Research Alliance Registry Investigators and the UK Juvenile Id. Comparative Effectiveness of a Second Tumor Necrosis Factor Inhibitor Versus a Non-Tumor Necrosis Factor Biologic in the Treatment of Patients With Polyarticular-Course Juvenile Idiopathic Arthritis. Arthritis care & research 2024. PMID: 38556945


  2. Fawole OA, Reed MV, Harris JG, Hersh A, Rodriguez M, Onel K, Lawson E, Rubinstein T, Ardalan K, Morgan E, Paul A, Barlin J, Daly RP, Dave M, Malloy S, Hume S, Schrandt S, Marrow L, Chapson A, Napoli D, Napoli M, Moyer M, Delgaizo V, Danguecan A, von Scheven E, Knight A, CARRA Investigators. Correction: Engaging patients and parents to improve mental health intervention for youth with rheumatological disease. Pediatric rheumatology online journal 2024. PMID: 38365775




  3. Cuneo AA, Outram S, Marsac ML, Vendlinski S, Heyman MB, Ly N, von Scheven E, Perito ER. Medical traumatic stress in cystic fibrosis: A qualitative analysis. Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society 2023. PMID: 36925385


  4. Smitherman EA, Chahine RA, Beukelman T, Lewandowski LB, Rahman AKMF, Wenderfer SE, Curtis JR, Hersh AO, CARRA Registry Investigators. Childhood-Onset Lupus Nephritis in the Childhood Arthritis and Rheumatology Research Alliance Registry: Short-Term Kidney Status and Variation in Care. Arthritis care & research 2023. PMID: 36775844


  5. Weitzman ER, Gaultney A, von Scheven E, Ringold S, Mann CM, Magane KM, Lin L, Leverty R, Dennos A, Hernandez A, Lippmann SJ, Dedeoglu F, Marin AC, Cox R, Reeve BB, Schanberg LE. Construct validity of Patient-Reported Outcomes Measurement Information System Paediatric measures in juvenile idiopathic arthritis and systemic lupus erythematosus: cross-sectional evaluation. BMJ open 2023. PMID: 36707118


  6. Rubinstein TB, Dionizovik-Dimanovski M, Davis AM, Smith C, Faust L, Rutstein B, Mitchell M, Jones JT, Harris JG, Rodriguez M, Tesher M, Onel K, Gabbay V, Stein REK, von Scheven E, Knight AM, CARRA Mental Health Workgroup. Multicenter Study of Utility and Acceptability of Depression and Anxiety Screening in Adolescents and Young Adults With Childhood-Onset Systemic Lupus. Arthritis care & research 2022. PMID: 34806329


  7. Roberts JE, Williams K, Dallas J, Eckert M, Huie L, Smitherman E, Soulsby WD, Zhao Y, Son MBF, CARRA Registry Investigators. Insurance Status and TNF Inhibitor Initiation Among Children with JIA in the Childhood Arthritis and Rheumatology Research Alliance Registry. The Journal of rheumatology 2022. PMID: 36521922



  8. Costa-Reis P, Maurer K, Petri MA, Levy Erez D, Zhao X, Faig W, Burnham J, O'Neil K, Klein-Gitelman MS, von Scheven E, Schanberg LE, Sullivan KE. Urinary HER2, TWEAK and VCAM-1 levels are associated with new-onset proteinuria in paediatric lupus nephritis. Lupus science & medicine 2022. PMID: 35918102


  9. Ezeh N, Ardalan K, Buhr KA, Nguyen C, Al Ahmed O, Ardoin SP, Barton V, Bell S, Brandling-Bennett H, Castelo-Soccio L, Chiu YE, Chong BF, Co DO, Lara-Corrales I, Cintosun A, Curran ML, Diaz LZ, Elman SA, Faith EF, Garcia-Romero MT, Grossman-Kranseler J, Hogeling M, Hudson AD, Hunt RD, Ibler EM, Marques MC, Monir RL, Oza V, Paller AS, Putterman E, Rodriguez-Salgado P, Schoch JJ, Truong A, Wang J, Lee LW, Vleugels RA, Klein-Gitelman MS, von Scheven E, Werth VP, Arkin LM. Cross-sectional characteristics of pediatric-onset discoid lupus erythematosus: Results of a multicenter, retrospective cohort study. Journal of the American Academy of Dermatology 2022. PMID: 35487332


  10. Weiss PF, Fuhlbrigge RC, von Scheven E, Lovell DJ, Colbert RA, Brunner HI, PRCSG Advisory Council, the CARRA Executive Committee. Children with enthesitis-related arthritis could benefit from treatments targeted for adults with spondyloarthritis. Arthritis care & research 2020. PMID: 33278336


  11. Yildirim-Toruner C, Pooni R, Goh YI, Becker-Haimes E, Dearing JW, Fernandez ME, Morgan EM, Parry G, Burnham JM, Ardoin SP, Barbar-Smiley F, Chang JC, Chiraseveenuprapund P, Del Gaizo V, Eakin G, Johnson LC, Kimura Y, Knight AM, Kohlheim M, Lawson EF, Lo MS, Pan N, Ring A, Ronis T, Sadun RE, Smitherman EA, Taxter AJ, Taylor J, Vehe RK, Vora SS, Weiss JE, von Scheven E, MAS for the CARRA Implementation Science Workgroup. Translating research into practice-implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat. 2022. PMID: 35130904


  12. Smitherman EA, Goh I, Pooni R, Vora SS, Yildirim-Toruner C, von Scheven E. Implementation Science in Pediatric Rheumatology: A Path to Health Equity. Rheumatic diseases clinics of North America 2022. PMID: 34798956


  13. Gilbert M, Goilav B, Hsu JJ, Nietert PJ, Meidan E, Chua A, Ardoin SP, Wenderfer SE, von Scheven E, Ruth NM, Pediatric Nephrology and Rheumatology Collaborative Group, the Childhood Arthritis and Rheumatology. Differences in rituximab use between pediatric rheumatologists and nephrologists for the treatment of refractory lupus nephritis and renal flare in childhood-onset SLE. Pediatric rheumatology online journal 2021. PMID: 34461932


  14. von Scheven E, Nahal BK, Kelekian R, Frenzel C, Vanderpoel V, Franck LS. Getting to Hope: Perspectives from Patients and Caregivers Living with Chronic Childhood Illness. Children (Basel, Switzerland) 2021. PMID: 34205410


  15. Fawole OA, Reed MV, Harris JG, Hersh A, Rodriguez M, Onel K, Lawson E, Rubinstein T, Ardalan K, Morgan E, Paul A, Barlin J, Daly RP, Dave M, Malloy S, Hume S, Schrandt S, Marrow L, Chapson A, Napoli D, Napoli M, Moyer M, Delgaizo V, Danguecan A, von Scheven E, Knight A, CARRA Investigators. Engaging patients and parents to improve mental health intervention for youth with rheumatological disease. Pediatric rheumatology online journal 2021. PMID: 33622346



  16. Brunner HI, Schanberg LE, Kimura Y, Dennos A, Co DO, Colbert RA, Fuhlbrigge RC, Goldmuntz E, Kingsbury DJ, Patty-Resk C, Mintz S, Onel K, Rider LG, Schneider R, Watts A, von Scheven E, Lovell DJ, Beukelman T, PRCSG Advisory Council and the CARRA Registry Investigators. New Medications Are Needed for Children With Juvenile Idiopathic Arthritis. Arthritis & rheumatology (Hoboken, N.J.) 2020. PMID: 32524767



  17. Zisman D, Samad A, Ardoin SP, Chira P, White P, Lavi I, von Scheven E, Lawson EF, Hing M, Mellins ED. US Adult Rheumatologists' Perspectives on the Transition Process for Young Adults With Rheumatic Conditions. Arthritis care & research 2020. PMID: 30740937


  18. Rubinstein TB, Ogbu EA, Rodriguez M, Waqar L, Woo JMP, Davis AM, Lapin WB, Ng L, Treemarcki E, von Scheven E, Knight AM, CARRA Mental Health Workgroup. Prioritized Agenda for Mental Health Research in Pediatric Rheumatology from the Childhood Arthritis and Rheumatology Research Alliance Mental Health Workgroup. The Journal of rheumatology 2020. PMID: 31941805


  19. Dumaine C, Bekkar S, Belot A, Cabrera N, Malik S, von Scheven A, Carbasse A, Woerner A, Wouters C, Bouayed K, Pillet P, Schroeder S, Hofer M, Hentgen V. Infectious adverse events in children with Juvenile Idiopathic Arthritis treated with Biological Agents in a real-life setting: Data from the JIRcohorte. Joint bone spine 2019. PMID: 31369865



  20. Heshin-Bekenstein M, Trupin L, Yelin E, von Scheven E, Yazdany J, Lawson EF. Longitudinal disease- and steroid-related damage among adults with childhood-onset systemic lupus erythematosus. Seminars in arthritis and rheumatism 2019. PMID: 31235075


  21. Knight A, Vickery M, Faust L, Muscal E, Davis A, Harris J, Hersh AO, Rodriguez M, Onel K, Rubinstein T, Washington N, Weitzman ER, Conlon H, Woo JMP, Gerstbacher D, von Scheven E, Childhood Arthritis and Rheumatology Research Alliance Investigators. Gaps in Mental Health Care for Youth With Rheumatologic Conditions: A Mixed Methods Study of Perspectives From Behavioral Health Providers. Arthritis care & research 2019. PMID: 29953741


  22. Cooper JC, Rouster-Stevens K, Wright TB, Hsu JJ, Klein-Gitelman MS, Ardoin SP, Schanberg LE, Brunner HI, Eberhard BA, Wagner-Weiner L, Mehta J, Haines K, McCurdy DK, Phillips TA, Huang Z, von Scheven E, CARRA registry investigators. Pilot study comparing the childhood arthritis and rheumatology research alliance consensus treatment plans for induction therapy of juvenile proliferative lupus nephritis. Pediatric rheumatology online journal 2018. PMID: 30348175



  23. Lovell DJ, Dare JA, Francis-Sedlak M, Ball J, LaMoreaux BD, Von Scheven E, Reinhardt A, Jerath R, Alpan O, Gupta R, Goldsmith D, Zeft A, Naddaf H, Gottlieb B, Jung L, Holt RJ. A 6-month, multicenter, open-label study of fixed dose naproxen/esomeprazole in adolescent patients with juvenile idiopathic arthritis. Pediatric rheumatology online journal 2018. PMID: 29941047


  24. Heshin-Bekenstein M, Perl L, Hersh AO, von Scheven E, Yelin E, Trupin L, Yazdany J, Lawson EF. Final adult height of patients with childhood-onset systemic lupus erythematosus: a cross sectional analysis. Pediatric rheumatology online journal 2018. PMID: 29688869



  25. Ringold S, Nigrovic PA, Feldman BM, Tomlinson GA, von Scheven E, Wallace CA, Huber AM, Schanberg LE, Li SC, Weiss PF, Fuhlbrigge RC, Morgan EM, Kimura Y. The Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans: Toward Comparative Effectiveness in the Pediatric Rheumatic Diseases. Arthritis & rheumatology (Hoboken, N.J.) 2018. PMID: 29333701


  26. Bernatsky S, Clarke AE, Zahedi Niaki O, Labrecque J, Schanberg LE, Silverman ED, Hayward K, Imundo L, Brunner HI, Haines KA, Cron RQ, Oen K, Wagner-Weiner L, Rosenberg AM, O'Neil KM, Duffy CM, von Scheven E, Joseph L, Lee JL, Ramsey-Goldman R. Malignancy in Pediatric-onset Systemic Lupus Erythematosus. The Journal of rheumatology 2017. PMID: 28765255


  27. Boneparth A, Wenderfer SE, Moorthy LN, Radhakrishna SM, Sagcal-Gironella AC, von Scheven E, CARRA Registry investigators. Clinical characteristics of children with membranous lupus nephritis: the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry. Lupus 2016. PMID: 27510603


  28. Zahedi Niaki O, Clarke AE, Ramsey-Goldman R, Yeung R, Hayward K, Oen K, Duffy CM, Rosenberg A, O'Neil KM, von Scheven E, Schanberg L, Labrecque J, Tse SM, Hasija R, Lee JL, Bernatsky S. Malignancy incidence in 5294 patients with juvenile arthritis. RMD open 2016. PMID: 27175293


  29. Knight AM, Vickery ME, Muscal E, Davis AM, Harris JG, Soybilgic A, Onel KB, Schanberg LE, Rubinstein T, Gottlieb BS, Mandell DS, von Scheven E, CARRA Investigators. Identifying Targets for Improving Mental Healthcare of Adolescents with Systemic Lupus Erythematosus: Perspectives from Pediatric Rheumatology Clinicians in the United States and Canada. The Journal of rheumatology 2016. PMID: 27036378





  30. Kraus V, Lawson EF, von Scheven E, Tihan T, Garza J, Nathan RG, Cordoro KM, Waubant E. Atypical cases of scleroderma en coup de sabre. Journal of child neurology 2014. PMID: 24667737


  31. Ardoin SP, Schanberg LE, Sandborg CI, Barnhart HX, Evans GW, Yow E, Mieszkalski KL, Ilowite NT, Eberhard A, Imundo LF, Kimura Y, Levy D, von Scheven E, Silverman E, Bowyer SL, Punaro L, Singer NG, Sherry DD, McCurdy DK, Klein-Gitelman M, Wallace C, Silver RM, Wagner-Weiner L, Higgins GC, Brunner HI, Jung L, Soep JB, Reed AM, Thompson SD, APPLE investigators. Secondary analysis of APPLE study suggests atorvastatin may reduce atherosclerosis progression in pubertal lupus patients with higher C reactive protein. Annals of the rheumatic diseases 2013. PMID: 23436914


  32. Bernatsky S, Clarke AE, Labrecque J, von Scheven E, Schanberg LE, Silverman ED, Brunner HI, Haines KA, Cron RQ, O'Neil KM, Oen K, Rosenberg AM, Duffy CM, Joseph L, Lee JL, Kale M, Turnbull EM, Ramsey-Goldman R. Cancer risk in childhood-onset systemic lupus. Arthritis research & therapy 2013. PMID: 24267155



  33. Mina R, Klein-Gitelman MS, Ravelli A, Beresford MW, Avcin T, Espada G, Eberhard BA, Schanberg LE, O'Neil KM, Silva CA, Higgins GC, Onel K, Singer NG, von Scheven E, Imundo LF, Nelson S, Giannini EH, Brunner HI. Inactive disease and remission in childhood-onset systemic lupus erythematosus. Arthritis care & research 2012. PMID: 22238253


  34. Mina R, von Scheven E, Ardoin SP, Eberhard BA, Punaro M, Ilowite N, Hsu J, Klein-Gitelman M, Moorthy LN, Muscal E, Radhakrishna SM, Wagner-Weiner L, Adams M, Blier P, Buckley L, Chalom E, Chédeville G, Eichenfield A, Fish N, Henrickson M, Hersh AO, Hollister R, Jones O, Jung L, Levy D, Lopez-Benitez J, McCurdy D, Miettunen PM, Quintero-del Rio AI, Rothman D, Rullo O, Ruth N, Schanberg LE, Silverman E, Singer NG, Soep J, Syed R, Vogler LB, Yalcindag A, Yildirim-Toruner C, Wallace CA, Brunner HI, Carra SLE Subcommittee. Consensus treatment plans for induction therapy of newly diagnosed proliferative lupus nephritis in juvenile systemic lupus erythematosus. Arthritis care & research 2012. PMID: 22162255


  35. Schanberg LE, Sandborg C, Barnhart HX, Ardoin SP, Yow E, Evans GW, Mieszkalski KL, Ilowite NT, Eberhard A, Imundo LF, Kimura Y, von Scheven E, Silverman E, Bowyer SL, Punaro M, Singer NG, Sherry DD, McCurdy D, Klein-Gitelman M, Wallace C, Silver R, Wagner-Weiner L, Higgins GC, Brunner HI, Jung L, Soep JB, Reed AM, Provenzale J, Thompson SD, Atherosclerosis Prevention in Pediatric Lupus Erythematosus Investigators. Use of atorvastatin in systemic lupus erythematosus in children and adolescents. Arthritis and rheumatism 2012. PMID: 22031171


  36. Lawson EF, Hersh AO, Applebaum MA, Yelin EH, Okumura MJ, von Scheven E. Self-management skills in adolescents with chronic rheumatic disease: A cross-sectional survey. Pediatric rheumatology online journal 2011. PMID: 22145642


  37. Brunner HI, Mina R, Pilkington C, Beresford MW, Reiff A, Levy DM, Tucker LB, Eberhard BA, Ravelli A, Schanberg LE, Saad-Magalhaes C, Higgins GC, Onel K, Singer NG, von Scheven E, Itert L, Klein-Gitelman MS, Punaro M, Ying J, Giannini EH. Preliminary criteria for global flares in childhood-onset systemic lupus erythematosus. Arthritis care & research 2011. PMID: 21618452


  38. Hersh A, von Scheven E, Yelin E. Adult outcomes of childhood-onset rheumatic diseases. Nature reviews. Rheumatology 2011. PMID: 21487383



  39. Baker-LePain JC, Nakamura MC, Shepherd J, von Scheven E. Assessment of bone remodelling in childhood-onset systemic lupus erythematosus. Rheumatology (Oxford, England) 2010. PMID: 21098573


  40. Ardoin SP, Schanberg LE, Sandborg C, Yow E, Barnhart HX, Mieszkalski Kl, Ilowite NT, von Scheven E, Eberhard A, Levy DM, Kimura Y, Silverman E, Bowyer SL, Punaro L, Singer NG, Sherry DD, McCurdy D, Klein-Gitelman M, Wallace C, Silver R, Wagner-Weiner L, Higgins GC, Brunner HI, Jung LK, Imundo L, Soep JB, Reed AM, APPLE investigators. Laboratory markers of cardiovascular risk in pediatric SLE: the APPLE baseline cohort. Lupus 2010. PMID: 20861207


  41. Brunner HI, Klein-Gitelman MS, Higgins GC, Lapidus SK, Levy DM, Eberhard A, Singer N, Olson JC, Onel K, Punaro M, Schanberg L, von Scheven E, Ying J, Giannini EH. Toward the development of criteria for global flares in juvenile systemic lupus erythematosus. Arthritis care & research 2010. PMID: 20535792


  42. von Scheven E, Bakkaloglu A. What's new in paediatric SLE? Best practice & research. Clinical rheumatology 2009. PMID: 19853834



  43. Lenders CM, Feldman HA, Von Scheven E, Merewood A, Sweeney C, Wilson DM, Lee PD, Abrams SH, Gitelman SE, Wertz MS, Klish WJ, Taylor GA, Chen TC, Holick MF, Elizabeth Glaser Pediatric Research Network Obesity Study Group. Relation of body fat indexes to vitamin D status and deficiency among obese adolescents. The American journal of clinical nutrition 2009. PMID: 19640956



  44. Schanberg LE, Sandborg C, Barnhart HX, Ardoin SP, Yow E, Evans GW, Mieszkalski KL, Ilowite NT, Eberhard A, Levy DM, Kimura Y, von Scheven E, Silverman E, Bowyer SL, Punaro L, Singer NG, Sherry DD, McCurdy D, Klein-Gitelman M, Wallace C, Silver R, Wagner-Weiner L, Higgins GC, Brunner HI, Jung L, Soep JB, Reed A, Atherosclerosis Prevention in Pediatric Lupus Erythematosus Investigators. Premature atherosclerosis in pediatric systemic lupus erythematosus: risk factors for increased carotid intima-media thickness in the atherosclerosis prevention in pediatric lupus erythematosus cohort. Arthritis and rheumatism 2009. PMID: 19404953


  45. Hersh AO, von Scheven E, Yazdany J, Panopalis P, Trupin L, Julian L, Katz P, Criswell LA, Yelin E. Differences in long-term disease activity and treatment of adult patients with childhood- and adult-onset systemic lupus erythematosus. Arthritis and rheumatism 2009. PMID: 19116979







  46. Kilcline C, Shinkai K, Bree A, Modica R, Von Scheven E, Frieden IJ. Neonatal-onset multisystem inflammatory disorder: the emerging role of pyrin genes in autoinflammatory diseases. Archives of dermatology 2005. PMID: 15724022










  47. von Scheven E, Athreya BH, Rose CD, Goldsmith DP, Morton L. Clinical characteristics of antiphospholipid antibody syndrome in children. The Journal of pediatrics 1996. PMID: 8804321


  48. Shaman J, von Scheven E, Morris P, Chang MD, Mellins E. Analysis of HLA-DMB mutants and -DMB genomic structure. Immunogenetics 1995. PMID: 7528727